Saving lives for steroid dependants

Molly has been very poorly All of her life, since the age of 3 Weeks she has been under some of the best consultants in our area.

She was only referred to endocrinology at the age of 14.

Im quite sure these conditions are not as rare as we think, Molly has suffered so much in her life with illness, she missed every single xmas party she was invited to because she was ill, we have only 'ever' had 2 whole Weeks holiday in 15 years because of circumstances making it impossible, every short break we have ever been on have been in the UK and is always very limited in what we can do.

Her brother and sister have been passed off to nanny and grampy so many times because of hospital admissions, and Molly has lost so much education, she is already a year behind at School and may have to drop another year, her entire life has been dictated by illness affecting her friendships, self confidence and social life, she basically has none of these.

We are very lucky now to have found a brilliant endocrine consultant and team but if a poorly child like Molly who is already under 8/9 experienced consultants building up from the age of 3 Weeks and this still wasn't found, how on earth is anyone else going to be diagnosed?

Im trying to prevent things like this happening, hopefully slowly molly will get better now but we cannot replace 14 years of pain and suffering for her....... PLEASE DO WHAT YOU CAN. & SIGN & SHARE THE PETITION. THANK YOU.